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Understanding NF1
Introduction About This Site Identifying What is NF1? How do I know if I have it? How is it diagnosed? Explaining What causes NF1? How can I expect? What are we learning about it? Managing What are my medical options? Are other resources and tools available? Supporting How do I care for and support my child? How do I talk about NF1? Animations You will need QuickTime 5 to view the following animations. Inheritance How is NF1 inherited? Spontaneous Mutation How does NF1 occur in a family? Neurofibroma How does a neurofibroma form? Video You will need QuickTime 5 to view the following video. These video segments were taped during June and July of 2002. Transcripts are also available. Consultation After their 3-year-old child, Hannah, was examined by Dr. Bruce Korf, Abby and Paul spoke with him about Hannah and NF1. Expert Interview Dr. Bruce Korf explained NF1 and current research projects. Personal Stories Andres is 22 years old and a financial analyst with NF1. He spoke with us about how he learned he had NF1. Megan is an active 18-year-old with NF1. She spoke with us about her experiences in school and her future academic plans. Miguel is the father of Andres, another interviewee on the site. He spoke with us about having a child with the disorder. Syrel is a teacher in her mid-40s who was diagnosed as an adult. She spoke with us about life with NF1 as a parent and teacher. Enhanced Glossary Key terms and definitions and a selection of images. Comments Send us your comments View other visitors' comments Technical Support Credits Copyright
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