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Transcript The video for this interview is also available. Megan's Interview Contents: Segment 1: How she first learned she had the disorder. Segment 2: Her important relationship with her mother. Segment 3: Some of her physical complications from NF1. Segment 4: Her learning disability and the positive impact of her new school. Segment 1: Well, when my parents first found out I had NF, they noticed a couple odd-shaped bumps on the side of my head and, um, the doctor also noticed a café-au-lait spot. I think it was on my back. And they just put, like, two and two together and I had the, um, bumps on my head removed and they were tested and they were actually NF. And there... I still have bumps and I still have café-au-lait spots today. That's really it. Segment 2: Any time I had a question about anything, my mom would always answer it for me. No matter what it was, she would always answer it truthfully so I would know what was going on in my life and she wouldn't be hiding anything from me. So it was good to know that she was actually telling me stuff that was actually happening and not just telling me stuff to make me feel better. And then when I got older, I did reports on it in school and I found information myself on the Internet and in books and magazines. Segment 3: I was active my whole childhood. I danced from 2 1/2 until 16 and I had no problems. I played softball. I played soccer. I was like a little kid that was just running around having a good time. Nothing really stopped me. My senior year, this year, I played soccer and basketball and I had a hard time because I have tumors on my ankle. And in soccer, I played my heart out. I ran every single game. I played every single game almost the whole game and I was fine. My ankle hurt a little bit but I wasn't complaining or anything. Segment 4: Reading was very hard. I kept reading words that weren't there. I would read too fast and then I would forget what I read. I wouldn't be able to process it. I'd read one sentence and then read another one and forget what I just read, the sentence before, because I was concentrating too hard on what I was reading because I couldn't read it through because I was changing words around, putting words that weren't there. But now reading has gotten a lot easier because I actually know how to break down words if I don't know what they are. Up until my junior year I attended public school and then I was accepted into a school called Landmark, which is a school for kids who have language-based learning differences. And when I was accepted to that school I was very excited. I was able to meet people who were like me and that were going through the same troubles that I was going through and who'd be able to understand where I was coming from.
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