Understanding NF1 | Consultation Video


•	What is NF1?
•	How do I know if I have it?
•	How is it diagnosed?


•	What causes NF1?
•	What can I expect?
•	What are we learning about it?


•	What are my medical options?
•	Are other resources and tools available?


•	How do I care for and support my child?
•	How do I talk about NF1?

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segments 1 - 6 | 7 - 11

Abby and Paul are the parents of Hannah, a 3-year-old with NF1. They consulted with Dr. Bruce R. Korf, a clinical geneticist and medical director of the Harvard Medical School-Partners HealthCare System Center for Genetics and Genomics. This consultation occured at Boston's Children's Hospital in July 2002, after Dr. Korf examined Hannah.

To see other video elements of this site, visit the expert interview and personal stories (Andres, Megan, Miguel, and Syrel).

You will need QuickTime 5 to view the video segments.

Segment 7: [1:38]

Hannah's parents ask about who should be involved in her care.

Segment 8: [2:32]

Hannah's parents ask about the likelihood of her having a learning disability.

Segment 9: [1:15]

Hannah's parents ask about when and how they should tell her about the disorder.

Segment 10: [2:24]

Hannah's parents ask about additional information and sources of support for families.

Segment 11: [1:53]

Dr. Korf talks about recent progress in understanding the disorder.

	segments 1 - 6 \| 7 - 11
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